I am sorry I haven’t updated recently and I hope you understand that it wasn’t intentional. Between the normal problems I’ve continued to have with my stomach (I believe I have 1, possibly 2 more hernias, so I see the gastro doc again in a couple of weeks), the neuropathy that has managed to keep part of my left forearm, hand, ring and pinky fingers numb for a constant 3 months and counting, and the double vision issues getting worse and making it difficult to read, I just haven’t truly had the passion to write or blog. I hope I haven’t let any of you down. I’m certain there is at least one of you that is reading this that can understand how depressing it can be when you feel like you’re alone in this and that you’re a burden to your family. It’s been especially frustrating that no one seems to be able to figure out what is happening to me.
There hasn’t been much in regard to what the doctors have learned about my condition and I feel like the hot potato that has been passed around. My PCP (primary care physician) and pain specialist have tried really hard, but both have said they don’t know and are doing their best to get me to the correct specialists. I’ve been to gastroenterology, neurology, neuro-ophthalmology, rheumatology, gynecology, a sleep study doctor, and as of this afternoon an endocrinologist. I’m not sure if he will figure it out either, but more bloodwork in the morning and then back to the neurologist. Over the next month I have appointments to see all of them again. In November I did have surgery on my left eye to tighten the muscle, so my eyes could start working again together. I had my follow up with him yesterday and says the residual double vision may correct itself in time, but he still didn’t know what caused it or why. Plus, at the rate of worsening I would be blind in 5 years without the surgery, so another surgery done, new glasses with bi-focal lenses and prisms on the way…guess we’ll see…excuse the pun..lol.
Anyhow, your caught up and no more depressing info. In my spare time, I have been helping my daughter with her Etsy store. I’ve been doing all kinds of crafts and have found that even with my numb fingers, I’m still able to do quite a bit on my good days. There are lots of tools to help people with multiple disabilities…I’ll share a list when I post next.
So if you like, please check it out. Also, my daughter is now a Jamberry Nails Consultant too. Check it out please…she’s 23 and my husband and I laugh because some days it feels like she will never move out…but on the other hand, it will be really hard when my baby girl and best friend leaves the nest. ;)
https://www.etsy.com/shop/PleinDesign?ref=hdr_shop_menu
http://rebeccaplein.jamberrynails.net/shop
There hasn’t been much in regard to what the doctors have learned about my condition and I feel like the hot potato that has been passed around. My PCP (primary care physician) and pain specialist have tried really hard, but both have said they don’t know and are doing their best to get me to the correct specialists. I’ve been to gastroenterology, neurology, neuro-ophthalmology, rheumatology, gynecology, a sleep study doctor, and as of this afternoon an endocrinologist. I’m not sure if he will figure it out either, but more bloodwork in the morning and then back to the neurologist. Over the next month I have appointments to see all of them again. In November I did have surgery on my left eye to tighten the muscle, so my eyes could start working again together. I had my follow up with him yesterday and says the residual double vision may correct itself in time, but he still didn’t know what caused it or why. Plus, at the rate of worsening I would be blind in 5 years without the surgery, so another surgery done, new glasses with bi-focal lenses and prisms on the way…guess we’ll see…excuse the pun..lol.
Anyhow, your caught up and no more depressing info. In my spare time, I have been helping my daughter with her Etsy store. I’ve been doing all kinds of crafts and have found that even with my numb fingers, I’m still able to do quite a bit on my good days. There are lots of tools to help people with multiple disabilities…I’ll share a list when I post next.
So if you like, please check it out. Also, my daughter is now a Jamberry Nails Consultant too. Check it out please…she’s 23 and my husband and I laugh because some days it feels like she will never move out…but on the other hand, it will be really hard when my baby girl and best friend leaves the nest. ;)
https://www.etsy.com/shop/PleinDesign?ref=hdr_shop_menu
http://rebeccaplein.jamberrynails.net/shop
