I apologize for not posting lately, unfortunately, I just haven't been well enough or up to doing it, but I'm biting the bullet now, since I could really use all your prayers and you deserve to be updated for following me this long.
Let's see....to get you all updated since my last post in September: The colonoscopy I had done the 25th of Sept. came back normal. This is actually a good thing, although it doesn't help in stopping any of my symptoms, its piece of mind that it isn't cancer, which runs in my immediate family. My team of doctors are at a standstill, at this point and just treating symptoms, wanting me to go to U of M, which I will be doing after the first of the year. Currently, with my health insurance maxed for this year, I have no choice but to wait until January. The lawyer is still working on my appeal for social security disability, no hearing date yet, but received a new packet with more forms to fill out a couple of days ago....so, it seems we're starting to get somewhere.
I still have chronic 24/7 abdominal pain, and the pain increases throughout periods of the day regardless of if I eat or not anymore, nausea, vomiting, lymphedema, depression, severe anxiety and panic attacks, vitamin deficiencies and malabsorption. I continue to keep getting kidney stones and UTI infections, I'm having vision issues such as blurriness and double vision, numbness in my hands and feet, I have not had my period since May because of the weight-loss, and I am constantly cold. I am covered in bruises, scrapes, and cuts from falling, my legs will just give out at times and can't hold my weight up, even though I'm still losing weight and am now down to 110 lbs. I look anorexic, I'll post some pictures, so you can see just how bad it really is. AND, although its been thinning, my hair is now coming out in clumps. I have bald areas and am looking into wigs and extensions. I'm embarrassed to even leave my house.
Picture differences:
May 2010---about 150 lbs., size 8:
March 2012--about 125 lbs., size 4:
November 2012--about 110 lbs., size 0-1:
Hopefully U of M will reach some conclusions, but for now I am starting to get scared. The more weight I lose, the closer I feel this is killing me. I'll update again, when I know more, probably after the holidays, so Merry Christmas and Happy New Years too....may 2013 be a better year for all.
